I was diagnosed with NF1 at 11 weeks old,
I
have always been the type of person to adopt
a positive attitude and to live my life to
the fullest,
despite the challenges that NF1
has given me. I live a very active life
style,
I sometimes have crazy ides, which I
always try out.
Overcoming my many
challenges
proves to
both others
and myself
that while I
may have
NF1. NF1
does not
have me. I
do not know
what lies
ahead of me
in terms of
my
condition,
but I do
know that
I'll always
make the
most of what
life gives
me. No one
tells you
life will be
easy, but we
can all make
the best of
what we do
have.
Supporting
others with
NF1 and
Scoliosis
has become a
big part of
my life and
equally, I
have been
supported by
many people
I have met
on my
journey so
far.
People with
NF1 tell me
they feel
isolated,
but we do
not have to
allow this
to happen.
You are not
alone and we
can help
each other.
"Please
Note"
Please keep
in mind that
all
treatment
and outcome
of results
are specific
to the
individual
patient and
results may
vary,
I hope that
by sharing
my
experience
with NF,
Scoliosis
and
my spinal
fusion
surgery it
will help if
you or
someone you
know has any
of the
conditions.
1st Book
"Living with
Neurofibromatosis
and
Scoliosis"
Also available
on
Kindle,
please
click here
for more
information.
If you would
like a
printed copy
of this
book, please
go to
Books for
Sale
section of
this site.
2nd Book
"Living with
Neurofibromatosis"
With input
from doctors
involved in
my care and over 40
other people's
stories from
around the
world with
NF.
Click Buy
Now on the
Left if you
live in the
UK. Click
Buy Now to
your right
for
USA
orders.
You can also
email me for
more
information
at the above
email
address.
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