Book Kirsty’s Story

There is not a lot of information for you to sit down and read about the condition “Neurofibromatosis”. When your told that you or a loved one has any kind of illness or condition it can be really scary.

I decided to write a book about how I cope with Neurofibromatosis and Scoliosis in words that we can understand and that children will also understand. Some of my doctors have also contributed to the book. The book was so successful that I kept being asked to write a second book which is what I have done. The second book also contains around 40 other stories of other people who also suffer from Neurofibromatosis, this gives an understanding as to how Neurofibromatosis affects people so differently. There is also information from some of the medical profession who are involved in my medical care. 
If you want more information you can email me and I will gladly help with any questions you may have.

My first Book
size 6×9

pages 264
ISBN: 9781456770488

soft cover £8.50 + £2.40 P.P

“Sorry” I can only post signed books within the UK, click Buy Now for UK orders only.

Click on the USA order below if you are outside the UK. “Thank you”

Book Cover


Soft Cover $12.38

Hard Cover $19.59

Book Cover

UK Orders “ONLY”
Soft Cover £8.50 + £2.40 P.P

Book Cover

available on Kindle.


My Second Book

Living With Neurofibromatosis Book
UK orders click Buy
Now below
Soft Cover  £12 + £2.40 P.P


Living With Neurofibromatosis Book
USA orders click Buy
Now below
Soft Cover


Email: for more information